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my dad

Post a new topicby livingwith on Tue May 20, 2008 1:08 pm

my dad symtoms started with twitching muscles in arms, we were sent to a doctor that recomended surgery 2 times in the neck to try and rule out als but it condition declined very fast .It first started in march of 2007 and as of maech 31st he was confined to wheel chair and bed ridden and in a wheel chair.He strangles on drinks and his speech has gotten bad .Hospice has started coming now .the doctor finally told us may 2008 he had a form of als ,brain shrinking ,also the brain stem shrinking al...Read the full article
livingwith
 
Posts: 5942 | Joined: Thu Aug 09, 2007 2:36 pm

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Re: my dad

Post a new topicby merrill on Sun Jun 22, 2008 12:00 am

louise, i'm sorry to hear about your dad, it sounds like you love him very much. i have been recently diagnosed with als myself, i'm 47 and have a 6 year old son. he knows something is up because i can no longer run with him, but he tells me 10 times a day he loves me and that is what a dad needs more than anything. you stay strong and hold his hand and talk to him about all the wonderful things you remember about him and how much he means to you and how much you love him everyday. read to him especially from the book of psalms. God bless you, merrill
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Posts: 1 | Joined: Sat Jun 21, 2008 11:41 pm

Re: my dad

Post a new topicby denisestrader on Sat Oct 25, 2008 7:54 am

I lost my Dad and 4 others from the family to this disease so I know your pain and I am sorry. Merrill, you are amzing and God will bless you and your son. Be encouraged by the recent passing of the ALS Registry and the US Military granting benefits and admitting a service connection. There is also a lot of progress in finding a cure for this disease. Please get connected with your local ALSA chapters as they are the only healthcare organization that focuses exclusively on ALS. Take care!
denisestrader
 
Posts: 5 | Joined: Fri Oct 24, 2008 7:58 am

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