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please read- docs leave us in the dark!

Post a new topicby heather_MI on Sun Mar 30, 2008 1:37 pm


my 74 year old dad was recently diagnosed with adenocarcinoma that has metasticized to his brain. he is having so many problems. dad and mom are so discouraged and frightened. they aren't getting help or answers from the docs. my dad is frustrated and is nearly refusing going back to the hospital because they don't seem to have answers and he's feeling like a guinea pig. he's gone through radiation and will get results from his mri to see how the radiation worked 4-8. they want to start chemo after that.
the most recent problem and major "scare" for him and my mom was this morning. my dad couldn't focus and mom said his eyes were movign uncontrollably. . she wanted to take him to the emergency room but he said no. she gave him keppra (seizure med) and after time, he seemed to feel better. it doesn't sound like any kind of seizure i've heard of. it sounds like the cancer may be doing something to the optic nerve. he has frequent headache. sometimes very painful. my mom gives him tylenol. he had major side effects from the keppra and our family doc said we could wean him off. the family doc is not the oncologist though. he doesn't seem to be an "expert". my dad felt so miserable though and not strong enough to start chemo so i think they felt it was worth the risk. we need help and answers. he's going downhill fast. any help is appreciated!!

heather_MI
 
Posts: 3 | Joined: Sun Mar 30, 2008 1:15 pm

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