Charcot Marie Tooth Disease

[livingwith]

hi i would like to know how you deal with the pain of this disease? I have it and i have a very hard time dealing with it.
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[Debra W]

My neurologist told me that you have to have a positive attitude. " Some people deal with pain other than others,but, the more positive you are hopefully the better you can handle it." Do you take medication for this? I take Lyrica 3 times daily of 150 mgs. I also use Lidocaine patches on the bottome of my feet when i go to bed. And, i pray ALOT...

[angellysd]

its truw my nurse mentioned 2 me that if u have a positive attitude it helps bcuz when ure body and brain notices that ure in a bad mood or tired or mainly emotionally unstable it releases a chemical in ure body that can trigger more pain....im going in 2 weeks 2 see my neurolgist hopefully i hear something good this time...