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The effects of CMT1

Post a new topicby livingwith on Mon Jun 02, 2008 7:41 pm


My daughter just turned 2 and I worry everyday that she will have this disease.
Her father is the one that carries the gene.
I was told by genetic counselers that she had a 50/50 chance of getting the gene from him. I was also told that it affects boys more than girls.
I know she will be able to live a normal life and I know she will not die from this, but I don’t know what to expect and I just feel totally unprepared and ignorant about this disease. I want to be able to help her and comfo...Read the full article
livingwith
 
Posts: 5757 | Joined: Thu Aug 09, 2007 2:36 pm

Re: The effects of CMT1

Post a new topicby rakirak on Thu Aug 28, 2008 7:34 am

hello, I´m from Spain. I´m 18 years old. I don't know a lot of English, but I can said that I have got CMT. The doctor´s operated me when I was 9 years. I couldn't walk very well and the other children laughed me because I was taking devices in the feet.
I never meet people who have CMT!
rakirak
 
Posts: 1 | Joined: Thu Aug 28, 2008 7:12 am

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